Filter Patient Stories by tags…

PE

Awareness Could Have Saved My Sister’s Life: Brenda and Vanessa’s Story

As told by her sister, Vanessa Brenda passed away on January 10, 2025, at 36. After almost three months of waiting, our family finally learned the cause of her death: pulmonary embolism due to lower extremity deep vein thrombosis. I’d heard of this condition before but never thought someone her age could be affected. The…

Read the full story

Symptoms Were Misdiagnosed as Asthma: Paul and Denise’s Story

As told by Paul’s mother, Denise. We wish we had known the symptoms of blood clots, and we wish we had known they can affect anyone, at any age, at any time. Sadly, Paul, Jr. was not one of the lucky ones. He did not survive his blood clot. He passed away on September 19,…

Read the full story

The Scariest News of My Life: Cherryl’s Story

In early September 2024, I noticed major swelling in my left leg/ankle but did what any 34-year-old would do — I chalked it up to something I ate that was bad for me. I had massages lined up toward the end of September to make me feel better from other health issues and stress at…

Read the full story

Now, I Want to Heal: Taylor’s Story

I gave birth to my daughter on March 15, 2022 via C-section. By April 9, I had developed debilitating pain in my right lower extremity, as well as a low-grade fever. I called my doctor, and she stated my pain was sciatica and the fever was not attributed to my recent surgery. My leg didn’t…

Read the full story

He Spread Kindness Everywhere He Went: Finley and Veronica’s Story

As told by Finley’s mother, Veronica Finley had been diagnosed with factor V Leiden homozygous in May 2023. I asked for him to be tested due to family history. No one explained his diagnosis to us, nor was it given any credence when brought up at doctor appointments. In June of 2024, in the height…

Read the full story

I Strive to be a Champion for Others: Corena’s Story

My journey with blood clots has profoundly shaped my understanding of both physical and spiritual wellness, becoming the cornerstone of my life. The first episode occurred in 2011 when I was three months pregnant with my fifth child. I had been experiencing persistent pain in my left leg, I was dismissed each time I went…

Read the full story

Continued Shortness of Breath Two Years After My PE: Shara’s Story

On New Years Day 2023, right as I was getting ready for bed, I started experiencing what felt like a strained muscle in the middle of the right side of my back. I briefly mentioned it to my partner as we were going to sleep but I didn’t think much of it until the next…

Read the full story

I Did Not Have Any Risk Factors: Stephanie’s Story

On November 21, 2024, I made an appointment with my primary care provider, thinking I would be diagnosed with a pulled muscle in my leg. She immediately knew it was not! She scheduled an appointment later in the afternoon with a vascular doctor. Sure enough, the ultrasound found a DVT from the middle of my…

Read the full story

I Suspected a Clot, But I Was Told It Was a Pulled Muscle: Paula’s Story

I went to the emergency room last year over what I thought was a blood clot in my leg. My D-dimer was elevated, but they still told me it was a pulled muscle and sent me home. So when I woke up in June 2024 and had the same pain in the same leg, I…

Read the full story

I’m Thankful to be Alive and Healthy: Jamison’s Story

I was 19 years old and home from college. I got what we thought at the time was a stomach virus. My mom took me to the doctor, but the symptoms persisted. After about a week, she decided we needed to head to the emergency room. We when arrived, they informed us that my heart…

Read the full story