Filter Patient Stories by tags…

PE

Two Blood Clots 10 Years Apart: Priyansh’s Story

I was diagnosed with a pulmonary embolism in 2013 as a side effect of steroids I was taking for nephrotic syndrome, a kidney disorder. I was on warfarin for two years until my doctor advised me to stop taking it. In March 2023, I had sudden pain in my left leg that was the worst…

Read the full story

The Doctor Didn’t Think I Would Live: Tabitha’s Story

It was one of the most exciting times! After six long weeks of wearing an air cast, I had just received news that I could get it removed. I told the doctor that my leg had been cramping, but he said it should subside once the cast was off and I moved around. Later that…

Read the full story

Finally Making Gains: Gerry’s Story

I’m a survivor of two pulmonary emboli. I’m finally making gains to restore “normal life” after years of small gains and constant setbacks. Before my pulmonary emboli in January 2016, I was healthy and ran lots of races. I thought it was an isolated incident and I wouldn’t get another one. It’s strange how life…

Read the full story

I Had No Idea That the Pain in my Knee Was a Warning Sign: Mark’s Story

About a week after having an arthroscopy on my left knee, I was icing the top of the knee and commented to my wife that I really should be icing the back of my knee. What I did not know at the time was that the back of the knee hurt because I was passing…

Read the full story

Go to the Hospital Instantly If You Have DVT or PE Symptoms: Bogdan’s Story

I played soccer for 20 years until January 2023, when I had a muscle rupture in my thigh, which kept me away from training and matches. At the end of April, I had a throat infection. Within a few days, I was experiencing shortness of breath and felt tired after taking a few steps, but…

Read the full story

Always Speak Up For Yourself: Lucia’s Story

I was nine weeks pregnant when I woke up on Dec. 24, 2022 with a pain in my back that radiated to my right side, under my ribs. The pain intensified in the evening and I had shortness of breath. At the ER, I was dismissed as having back pain and given pain medications. Six…

Read the full story

It Took Me Weeks to Come to Terms With My Diagnosis: Sharon’s Story

I started to feel pain under my left shoulder blade and thought I had pulled a muscle. I iced it and it started to feel better. But the next day, I woke up feeling worse. The pain had expanded around my rib cage on both sides, making it challenging to breathe. I went to work…

Read the full story

I Live Every Day Freely, With Love and Intent: Egypt’s Story

After walking up five flights of stairs to a friend’s Manhattan apartment, I rested at the top of the staircase. It took me almost 15 minutes to gain control of my breathing. I chalked it up to the extra pounds I had gained. A few days later, my bottom lower right extremity began to swell…

Read the full story

My Only Risk Factor was an Estrogen-Based Birth Control Patch: Stacy’s Story

On May 22, 2022, I woke up and had breakfast with my family. As I was getting ready for my day, I felt dizzy and weak, then I fainted. When I woke up, I projectile vomited.   I eventually made it to the shower. When I got out, I was still feeling weak and dizzy. The…

Read the full story

I Heard the Doctor Say my Outlook Wasn’t Great: Morgan’s Story

In March 2019, I was recovering from a broken ankle when I began experiencing odd, unfamiliar symptoms, like shortness of breath and back pain. I thought it was anxiety.   My husband picked me up from work one day, and the second I got in his car, I couldn’t breathe, then I passed out. When he…

Read the full story