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PE

I Live Every Day Freely, With Love and Intent: Egypt’s Story

After walking up five flights of stairs to a friend’s Manhattan apartment, I rested at the top of the staircase. It took me almost 15 minutes to gain control of my breathing. I chalked it up to the extra pounds I had gained. A few days later, my bottom lower right extremity began to swell…

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My Only Risk Factor was an Estrogen-Based Birth Control Patch: Stacy’s Story

On May 22, 2022, I woke up and had breakfast with my family. As I was getting ready for my day, I felt dizzy and weak, then I fainted. When I woke up, I projectile vomited.   I eventually made it to the shower. When I got out, I was still feeling weak and dizzy. The…

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I Heard the Doctor Say my Outlook Wasn’t Great: Morgan’s Story

In March 2019, I was recovering from a broken ankle when I began experiencing odd, unfamiliar symptoms, like shortness of breath and back pain. I thought it was anxiety.   My husband picked me up from work one day, and the second I got in his car, I couldn’t breathe, then I passed out. When he…

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Please Don’t Take ‘You’re Fine’ as an Answer: Shola’s Story

During my first pregnancy, I had been feeling faint. Soon after, I started getting headaches with flashing black dots in my eyes.  My midwife had told me that my blood pressure was higher than it should be, and that if I got any painful headaches and started seeing black dots, I should go straight to…

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My Only Risk Factor Was Estrogen: Ann’s Story

I started having intermittent chest pain in March 2021. I thought it was a sports injury and went to see my primary care provider (PCP). By May of that year, the pain was constant, so my PCP scheduled a CT scan.   I arrived at the imaging center and they had not received my order.…

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We Lost Our Son at the Age of 20: Adam’s Story

As told by his mother, Jenifer. On Dec. 3, 2020, I took my 18-year-old son, Adam, to the ER. He had severe back and leg pain, and his leg was swollen and purple. I thought that it was a pinched nerve or maybe a kidney infection.    Doctors discovered a massive clot in his left…

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This Experience has Taught Me to Lean on my Support System: Careese’s Story

I started becoming short of breath around Memorial Day weekend. I’d get winded walking from the parking garage at work to my desk, and walking from my apartment to my car.    Since I had COVID the month before, my doctor thought it could be long COVID and I was given an inhaler.    On June 16,…

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‘It’s a Minor Pain and This Girl is Making a Fuss About it:’ Pradnya’s Story

I was 21 years old when I began experiencing cramps, pain, and a burning sensation in my left calf. I visited multiple providers, who told me my symptoms might be due to a deficiency.   But I woke up one morning and couldn’t stand up. I had a shooting pain from my left groin to my…

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Talking About My PE and Researching It Has Helped Lessen My Anxiety: Sarah’s Story

On Dec. 8, 2021, I was about to take my daughter to a holiday event before going to work. She had forgotten her hoodie, so I ran upstairs for it and immediately felt lightheaded with a pounding heart. I had been suffering from shortness of breath for a few weeks but had put it down…

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If I Hadn’t Been Persistent, My Outcome Would’ve Been Much Different: Licinda’s Story

On April 22, 2021, I was experiencing shortness of breath, but I thought it was just allergies or connected to wearing a mask during the height of COVID-19. I was walking my dog when my Apple watch started beeping to alert me of my extremely high heart rate. I couldn’t decide if I should call…

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