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PE

My Husband Passed Away at 47: Katie’s Story

My name is Katie, and I am Jordan’s widow. He and I were married for 12 years. Jordan died unexpectedly of a massive pulmonary embolism (PE) on July 8, 2020.   He survived his first unprovoked deep vein thrombosis (DVT) to PE in October 2019. He ignored symptoms of right thigh pain, swelling, redness, and warmth.…

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I Cut Back on My Meds to Provide For My Baby: Alan’s Story

It started in 2013 with deep vein thrombosis (DVT) in my right leg and a pulmonary embolism (PE). After walking around on a sore and swollen leg for a while, I experienced severe shortness of breath after climbing two flights of stairs.    My brother took me to the hospital, where I was treated and placed…

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I’m Lucky to be Alive: Amanda’s Story

My first issue with deep vein thrombosis (DVT) began in November of 2022. My family and I went on a five-hour road trip to Disneyland. A week after returning home, I began to develop a charley horse cramp in my right calf.    I assumed I had pulled a muscle somehow. I tried massage and…

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I Had Clots in Both Legs While Running Endurance Races: Ernie’s Story

In the summer of 2022, I started having shortness of breath but thought nothing of it. I had just run an 18-mile trail race the Saturday before, and it can take a few days for your body to feel normal again. A little coughing and sore throat from running in the dirt for four hours…

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I Thought I Had COVID: Talicia’s Story

In January 2021, I woke up in the middle of a Sunday night feeling like I needed to put ice water on my body. As I carried the glass of ice water back to bed, I suddenly found myself struggling to make it to the couch. What seemed like minutes later, I woke up with…

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I Missed Two Doses of My Blood Thinner: Diana’s Story

In August 2020, I had severe left calf cramping, but I didn’t think much of it. The next morning, I awoke to a sensation going up my leg. I felt an explosion in my chest and could not catch my breath. I figured it was anxiety until the next day, when I couldn’t handle the…

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Protein C Deficiency Often Has No Symptoms: Alicia’s Story

I will never forget February 18, 2022. At the time, I was a healthy, active 30-year-old, training for my seventh half marathon. Two nights before, I had developed chest pain and shortness of breath. I wrote off the chest pain as a pulled muscle from lifting and dismissed the shortness of breath as anxiety.    But…

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‘Am I Going to Die?’: Christopher’s Story

I had an injury to my forearm in June 2022. Less than a week later, I started getting severe chest pains. I was taken to the hospital with c-reactive protein test (CRP) markers of 93 and was sent home with antibiotics.   A week later, I experienced the same pain, but worse. This time a CT…

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I Appreciate Good Health More Now: Susan’s Story

Turning 50 was no big deal to me. I was healthy, happy, and active. But a few months later, I was diagnosed with five life-threatening blood clots in my lungs, along with a large infarct — a small area of dead tissue resulting from the failure of blood supply – at the base of my…

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Michael Walker in a hospital bed on January 14, 2022 and healthy on January 22, 2023

The EMTs Had to Get Me Off the Floor: Michael’s Story

One week before my diagnosis, I noticed I was getting weak. Not weakness from being tired, but unusually weak without cause (I thought).   I also had a nagging cough and was constantly clearing my throat. I began to presume that I had caught the coronavirus, so I started doctoring myself. After a few days, I…

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