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I Continue to be Gaslit: Stephanie’s Story
When I was around 23, I started to go to the doctor complaining about persistent, enduring headaches. I was told it was stress. I went to the optician, where I was immediately sent to the emergency eye hospital. I had idiopathic intercranial hypertension, which was causing vision loss due to my optic nerves being forced…
Misdiagnosed With a Gallbladder Attack: Bob’s Story
My wife and I have an RV and sometimes we are on the road for 6-10 hours without stopping. One day, after a long trip, I began having pain in my left calf. I went to my doctor and he ordered an ultrasound on my leg and discovered a blood clot. I started taking a…
Always Smiling With an Irish Twinkle In Her Eye: Kathleen’s Story
As told by her daughter Katie My mom was one of the healthiest people I knew. She had never been to the hospital besides to have her six children. Over the summer months of July and August of 2022, the only symptom my mom noticed was a slight shortness of breath when she went up…
Be Informed About Your Clotting Risk: Abby’s Story
On December 19, 2024, I noticed that my right thigh hurt and was discolored (purple-ish) but dismissed it, thinking that it was just bad circulation that would go away. Later that night, I felt extremely light-headed, my vision went dark and almost passed out. My mom and I rushed to the hospital because something was…
I’m a Nurse and I Missed The Signs: Rachael’s Story
In April of 2024, I flew from Tennessee to California for work. The night after arriving, I woke up in the middle of the night with a bad calf cramp. The following day, my calf was extremely sore– like the worst muscle cramp I’d ever had. That same day, I took another flight from California…
Keep Breathing In The Beauty: Joanna’s Story
Watch a video of Joanna’s story here. I am a miracle in motion, and my story is one of ongoing survival and transformation of finding beauty that fuels me in life’s most challenging moments. I didn’t know much about blood clots until three of them nearly took my life — an unexpected complication after a…
I Decided To Trust My Instincts: Bethan’s Story
I am a keen runner and I live in a national park in Wales, so I regularly run by myself in the hills. This is my happy place. Last year I ran for Wales for the first time, representing my country doing what I love, which was an incredible feeling. In early January of this…
I Was Diagnosed With Unexplained Chest Pain: Kyndal’s Story
At the end of summer in 2018, I was days away from the beginning of my college soccer career at Furman University. Every day that summer, I was preparing my body physically for the demands of being a college athlete. During my last workout before I left for preseason, I began experiencing chest pain, shortness…
My Children Will Have Education About Blood Clots: Katelyn’s Story
It was the last day of our honeymoon. We were packing when I had a sudden onset of nausea, and I was also hot, dizzy, and out of breath. It felt like I was running a marathon every few feet I walked. But I was determined to enjoy our last day, so I took a…
It Was The Beginning of My Transformation: Nicki’s Story
I just had my one-year clotiversary! Last Presidents’ Day, on February 19, 2024, I faced a life-altering struggle. After days of coughing up blood and an urgent care provider’s dismissive reassurance that I simply had a bad case of bronchitis, I finally found help in the emergency room. Doctors diagnosed me with an unprovoked pulmonary…
