PE
There’s A Reason I’m Still Here: Barbara’s Story
I am a 2x pulmonary embolism survivor. My first one was in July 2013. I had traveled out of the country, come home, and traveled for my daughter’s soccer games. I was on birth control and overweight. We got home from a weekend tournament, and when I went to stand up, it felt like I…
The Symptoms Were So Subtle: Sonja’s Story
As told by her daughter Kirsten My mother Sonja was a sparkling school principal and 62 years old. She loved her teachers and children. In mid January 2022, she had a pain behind knee that she was used to, as she had mild arthritic chronic pain. She made her usual chiropractor appointment on January 27,…
Blood Clots Are Often Misdiagnosed as Pneumonia: Taylor’s Story
My 14-year-old son died. I took him to the doctors twice the same week of his death. They diagnosed him with light pneumonia in his left lung. He died less than a week later and when the autopsy came back, it showed he had blood clot in his left lung and no pneumonia. I’ve done…
Things Do Get Easier: Patsy’s Story
One Sunday afternoon, I was giving my daughter a bath when I suddenly became very hot and dizzy. I felt my heart fluttering and then I had difficulty breathing. I called for my husband and we both agreed that I had probably overdone it and gotten too hot. I took it easy the rest of…
I Was Diagnosed with Factor V Leiden When It Was New: Lisa’s Story
In March 1989, I was a sophomore in college and on spring break in Florida when my left calf became extremely swollen and I could barely walk. I also had severe pain in between my shoulders and had shortness of breath. A friend took me to the ER, where I stayed for almost two weeks.…
She Thought She Was Protected: Jessica’s Story
As told by her sister Ashley My sister Jessica was diagnosed with deep vein thrombosis that caused her to have a pulmonary embolism when she was 21 and she almost died. She had an IVC filter placed at that time, but it didn’t keep her from developing another DVT in July 2023 that caused her…
I Have to Take Things Slow Now: Reachelle’s Story
I was six months in my new job as an attorney when I felt pain in my ribs and shortness of breath. I went to urgent care and was rushed to the ER after my D-Dimer blood test came back high. At the hospital, they did a CT scan and found the blood clots in…
Every Day Since My Diagnosis Has Been Challenging: Mymoena’s Story
I was working in the chemistry lab when suddenly I experienced a sharp, stabbing pain in my lower back that caused me to fall to the ground. I was rushed to the nearest hospital and, after some tests, I was sent home with the diagnosis of muscle spasms. From that day onwards, the pain in…
He Passed Away on the Way to the Hospital: Brian’s Story
As told by his wife, Allison In January 2017, my husband Brian and I had been married for one year, and I had just given birth to our son seven weeks earlier. Brian started mentioning that he had bad calf pain. For a man that never complained, this was odd, but I didn’t know to…
It’s Important to Listen to Your Body: Dan’s Story
On Valentine’s Day 2013, I woke up with what I thought was a stomach virus. A few hours later, I was in the ER with a diverticulitis attack that split open my intestine and spent 10 days in the hospital. A few months later, I had another diverticulitis attack, but I caught it early and…
