Thrombassador
I Broke Up With My Doctor: Ana’s Story
In 2021, I was experiencing shortness of breath, blue lips, constant fatigue, and brain fog. I could barely walk up one flight of stairs to my apartment and would collapse at the door many times. My doctor kept saying it was bronchitis and would regularly test for Covid, which always came back negative. I ultimately terminated…
This Experience Transformed My Life: Nina’s Story
I was on a business trip to Scotland when I suddenly felt a sharp pain in my chest during pre-dinner drinks. I began to feel dizzy and had difficulty breathing. I thought it might be anxiety caused by dehydration and not having eaten that day. A taxi was arranged for me to return to my…
We Must Be Advocates for Ourselves and Our Family Members: Marcus’ and Shannon’s Story
As told by his daughter, Shannon In April 2024, my father, a retired police lieutenant, was diagnosed with duodenal cancer. He was unable to have the tumor removed and was undergoing chemotherapy. In late August 2024, he started complaining about being dizzy and lightheaded. He went to his primary care provider who told him that…
Today, I’m Blessed to Have My Health: Kimberly’s Story
I started having superficial clots (SVTs) in the early 1990s, which was attributed to birth control. Genetic testing was not available at that time. I joined a list serve (email group) to learn more. Fifteen years later, with occasional SVTs and genetic testing now available, I was diagnosed with one factor V Leiden gene (heterozygous).…
I Ignored My Body’s Signals: Kim’s Story
In 2015, six weeks after starting a synthetic, estrogen-based birth control pill for perimenopausal symptoms, and one month into an overseas trip, I experienced the first symptoms of what I now know to be deep vein thrombosis and multiple pulmonary emboli. Sadly, my years of experience as a critical care nurse did not help me…
Adjusting to the New Normal Was the Most Difficult Part: Kate’s Story
I experienced my pulmonary embolism in September 2023. Our youngest son and I had taken our older children to school, and the day went on normally. I noticed that I was becoming easily winded while doing really simple activities. My heart rate was also high. After school, our middle child had soccer practice and sat…