Woman

This photo was taken before I went to the ER, but I was already having shortness of breath upon exertion. That was my only symptom. I saw so many doctors and had three CT scans without dye and nothing was found on my lungs. One week in March 2015, my breathing got worse and one…

My name is Lisa Nelson and I am 35 years old. I happened to run across the listing for the annual Austin Stop The Clot race on the calendar page from RunTex and was disappointed it was coming up so soon. I couldn’t possibly still sign up, but more importantly: Am I up for a…

I was recently asked to present to a professional group of thought leaders about my experiences with atrial fibrillation (AFib).  In preparing for that presentation, I put a lot of thought into how I might tell this story and in wondering about how I should start my story, and I realized that I was thinking…

On October 25th, 2012, I called my boyfriend to come and pick me up from work, despite living just a 10-minute walk away. The bad shoulder and back pain I had been dealing with in recent days turned into a sharp stabbing sensation throughout my body, leaving me breathless and unable to walk more than…

When I was 14 years old, my father died at age 41 of massive pulmonary emboli (PE). At that time, there was no genetic testing to determine if he had a clotting disorder. I am 49 years old now, and I survived bilateral pulmonary emboli (PE) with deep vein thrombosis (DVT) one year ago. I…

My name is Alyssa and I was diagnosed with multiple pulmonary emboli (PEs) in January 2012 at the age of 21. I have finally gotten past the “I can’t believe this happened to me” stage and have finally adopted the “I can do something about this” attitude. My three-year anniversary of pulmonary emboli is coming up…

I had just been released from the hospital due to a severe allergic reaction. I was allowed to leave, but with some medication and no signs of blood clots. It had been just two days after I left when I began to get a high fever with swollen lymph nodes on the right side of…

I discovered that I was heterozygous for the factor V Leiden mutation in June of 2000 after my mother tested positive during a workup for superficial thrombophlebitis. My primary care physician recommended that I be tested, since I was taking oral contraceptive pills. She also had a friend who had been recently diagnosed with factor…

In every person’s life, there is one instance or one moment that changes them in ways they never believed possible. A moment where they reevaluate all that they have and all that they have worked for. Whether it is a good or bad change, it is without a doubt a memorable one. Some happen later…

My name is Caitlin and this is my blood clot and May-Thurner Syndrome (MTS) story. At 29, I was an active person, traveling a lot, playing sports, and chasing my nieces and nephews. One day, I thought I had pulled a muscle in my left thigh but shook it off with exercise. However, when the…