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She Thought She Was Protected: Jessica’s Story

As told by her sister Ashley My sister Jessica was diagnosed with deep vein thrombosis that caused her to have a pulmonary embolism when she was 21 and she almost died. She had an IVC filter placed at that time, but it didn’t keep her from developing another DVT in July 2023 that caused her…

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I Have to Take Things Slow Now: Reachelle’s Story

I was six months in my new job as an attorney when I felt pain in my ribs and shortness of breath. I went to urgent care and was rushed to the ER after my D-Dimer blood test came back high. At the hospital, they did a CT scan and found the blood clots in…

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Every Day Since My Diagnosis Has Been Challenging: Mymoena’s Story

I was working in the chemistry lab when suddenly I experienced a sharp, stabbing pain in my lower back that caused me to fall to the ground. I was rushed to the nearest hospital and, after some tests, I was sent home with the diagnosis of muscle spasms. From that day onwards, the pain in…

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I Was Misdiagnosed as Having a Heart Attack: Julie’s Story

In November of 2022, I was driving home from work when out of nowhere, my heart started hammering and went out of rhythm. I made it home and told my partner that I wasn’t okay and needed to go to the ER immediately. We got as far as the local urgent care where I told…

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The Doctor Told Her Not to Worry: Marsha’s Story

My younger sister Marsha had many blood clots over the years. She found out that she had protein S deficiency shortly after our father died in 1998. She had veins that were painful and found a doctor who was willing to strip them (phlebectomy). Marsha asked him about her history with clots. The doctor told…

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My CVST Was Caught Just In Time: Naomi’s Story

I had my beautiful baby boy on August 26, 2023. I had a low-risk pregnancy and a water birth with no complications. At 2.5 weeks postpartum, I began to get a headache that I assumed was from sleep deprivation. As a migraine sufferer, I am used to severe headaches and had not been on my…

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We Were Dismissed: Kaylie’s Story

As told by her mother, Tina. My daughter Kaylie passed away at the age of 21 from bilateral pulmonary emboli that had gone undiagnosed even though she had been to the doctor just three weeks prior to her death. Her symptoms were severe upper back pain near her shoulder, shortness of breath, and rapid heart…

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My Symptoms Were Misdiagnosed as Anxiety: Tamara’s Story

I had knee surgery and was six weeks post-op, so I had no worries about clots. I was also on birth control, though. I stretched one night and felt excruciating pain in my left rib. I could barely move. I managed to get to a hospital and was told it was costochondritis — inflammation of…

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I No Longer Live in Fear of Another Re-Clot: Staci’s Story

In July 2018, I developed a nagging dry cough and chest discomfort. I have a history of pneumonia, so I went to urgent care for a chest x-ray. It was clear and I was told I likely have a viral chest cold. The cough continued to linger on, not responding to over-the-counter cough medicine. As…

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Make Doctors Take Your Concerns Seriously: Gwendolyn’s Story

As told by her daughter LaKeitha My mother passed away after experiencing difficulty breathing for a week. Despite visiting the doctor, they didn’t consider a blood clot. One night, fearing the worst, my father rushed her to the hospital. Tests on her upper body led to her admission due to ongoing breathing issues. Tragically, she…

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