My Symptoms Felt Like Indigestion: Amy’s Story
…multiple pulmonary emboli and further testing showed I had heterozygous factor V Leiden. I immediately went on blood thinners and will be on them for the rest of my life….
I Live With the Pain of Taking Deep Breaths: Celeste’s Story
…with factor V Leiden. Three years later, I live with the pain of taking deep breaths, but I am thankful to be alive. I’ve lost 70+ pounds and work on…
My Doctor Said I Was Fine, My Intuition Saved My Life: Chriselda’s Story
…week of recovering from my unsuccessful catheter-directed thrombolysis. I was finally tested for clotting disorders and was diagnosed as homozygous for factor V Leiden, or FVL. I was one of…
Resource Center
…and Blood Clots Family Testing for Clotting Disorders (pdf) …
My Saving Grace: De’Shawn’s Story
…people who have experienced a blood clot, please click here. To learn more about Factor V Leiden, please click here. To learn more about risk factors for blood clots, please…
My Lifelong Experience with FVL: Gemma’s Story
I was diagnosed with the genetic clotting disorder factor V Leiden when I was 15 years old. My aunty (my dad’s sister) had a blood clot during pregnancy and she…
I Thought I Was Having a Heart Attack While Holding My Newborn: Megan’s Story
…of the Factor V Leiden mutation and one copy of the prothrombin gene mutation. I was placed on blood thinning injections twice daily for nine months, then switched to an…
With Gratitude, Optimism is Sustainable: Todd’s Story
…my moms death. I was factor V Leiden positive and homozygous. I had not only inherited it from my mother, but my “never around” father also. This made me very…
I Still Can’t Bend My Left Foot: Marjorie’s Story
…control is a risk for blood clots and the risk increases if you also have a genetic clotting disorder, such as Factor V Leiden. If you’ve had a blood clot,…
I Never Thought it Could Happen to Me: Mariah’s Story
…days for testing and observation. I was immediately prescribed Coumadin® (Blood thinner or anti-clotting medication) and compression stockings. I found out that I have the Factor V Leiden mutation (a…