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National Heart Month: All About AFib | February e-Newsletter

In our February e-Newsletter, we take a closer look at atrial fibrillation, or AFib, in …

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Heather Beissel

Meet the Recepients of the 2024 NBCA Community Thrombassador Awards

On January 18, 2025, NBCA Community Thrombassadors – a network of patients and caregivers trained to spread blood clot education,…

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Jen's Stuff - 2024-03-12T121846.894

Influence Change: Join the NBCA Advocacy Institute

To put an end to the 100,000 deaths each year to blood clots, the National Blood Clot Alliance is accelerating…

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Advancing blood clot awareness, prevention, diagnosis, and successful treatments to #stoptheclot.

@trey_smith of the Kansas City @Chiefs reflects on

@trey_smith of the Kansas City @Chiefs reflects on his 2018 blood clot diagnosis.

As he gears up for his third consecutive Super Bowl this weekend, join us as we rally behind Trey, wishing him good luck and saying “thank you” for being an advocate and voice for those who have suffered from blood clots and their loved ones. Knowledge is power!

Join our community of blood clot survivors, loved ones, and advocates in our 100,000 Reasons Challenge in remembrance of the 100,000 Americans who lose their lives annually to blood clots. Learn more about the Challenge and sign up at the link in bio. (bit.ly/100kReasons2025)

#stoptheclot #bloodclots #dvt #pulmonaryembolism #deepveinthrombosis #bloodclotsurvivor #treysmith #kansascitychiefs #nfl #SuperBowlLIX #chiefskingdom #NBCAandTrey #MovetoStoptheClot #BCAM #BloodclotAwarenessMonth #BCAM2025

👉 Swipe left to follow Donna's journey: from a

👉 Swipe left to follow Donna's journey: from a slip and fall on ice, through three days in the ICU, to coping with lingering PTSD—and how finding NBCA has been a crucial part of her healing.

More patient stories at the link in bio.

#stoptheclot #stoptheclotstory #bloodclots #vte #antiphosopholipidsyndrome #aps #pulmonaryembolism #pe #bloodclotsurvivor #bloodclotpatient #bloodclotawareness #swipeleft

🚶‍♀️🏃‍♂️March is Blood Clot Awar

🚶‍♀️🏃‍♂️March is Blood Clot Awareness Month—let’s move for a lifesaving cause!

Sign up for the 5th Annual 100,000 Reasons Challenge, a 31-day movement challenge honoring the 100,000 lives lost to blood clots each year. Every step, mile, and effort helps raise awareness and prevent future tragedies.

How it works:

✔️ Choose any activity—walk, run, bike, swim, or move your way.

✔️ Set personal movement and fundraising goals.

✔️ Raise awareness and support life-saving education and research.

The challenge kicks off March 1—but you can set up your page and start fundraising any time. Let’s make every move count!

👉 At the link in bio, sign up to secure early registration pricing! (bit.ly/100kReasons2025)

#stoptheclot #BloodClotAwarenessMonth2025 #100KReasonsChallenge #100KReasonsChallenge2025 #RaceToStopTheClot #bloodclotawareness #bloodclotpatient #bloodclotsurvivor

Shannon’s father, Marcus, was diagnosed with duo

Shannon’s father, Marcus, was diagnosed with duodenal cancer in April 2024 and underwent chemotherapy. Months later, he developed a PE and DVT, but was misdiagnosed, and died from cardiac arrest. Through her grief, Shannon discovered that cancer patients face heightened risks blood clots—risks that are often overlooked. This story serves as a powerful reminder of the need for greater awareness and advocacy.

If you or a loved one have undergone cancer treatment, were you told of the increased risk for blood clots?

Learn more about how cancer and blood clots can intersect at the link in bio.

#stoptheclot #bloodclots #CAT #cancerassociatedthrombosis #cancerandbloodclots #cardiacarrest #pulmonaryembolism #pe #deepveinthrombosis #dvt #fatalpe #bloodclotawareness #bloodcloteducation

In the latest issue of Endovascular Today, NBCA Vo

In the latest issue of Endovascular Today, NBCA Volunteer President Leslie Lake discusses patient advocacy and collaboration with Dr. Suresh Vedantham, a member of NBCA’s Medical and Scientific Advisory Board.

The discussion explores the unique collaboration between this patient-led organization and physicians, highlighting the importance of cross-education, where patients and clinicians learn from each other across various NBCA programs to improve patient care and outcomes.

Lake explains how NBCA’s clinically-backed resources, including the New Patient Resource Guide and monthly PEP Talk webinars, help to address gaps in patient care.

“Being a patient gives you a very different perspective versus that of a clinician,” said Lake, who is a pulmonary embolism survivor herself. “We engage our patient community to truly understand their experience and where gaps in care may have occurred, and we answer their questions in a nonclinical way so they can be more easily understood.”

Read the article to gain insights into how patient-driven advocacy and physician collaboration are transforming blood clot care and improving outcomes for patients nationwide at the link in bio.

#stoptheclot #endovasculartoday #bloodclotpatientcare #bloodclots #patientadvocacy #bloodclotsurvivor #bloodclotpatient #pulmonaryembolism #deepvein thrombosis #vte

If you're at risk for blood clots or currently tak

If you're at risk for blood clots or currently take anticoagulants, even routine procedures like colonoscopies, skin biopsies, or gynecological procedures such as IUD insertion or removal, may come with added considerations. Understanding how to navigate these situations is crucial for your safety and peace of mind.

We’ll guide you through the essentials of prepping for medical procedures while managing clotting risks and medications during our February PEP Talk.

You'll gain valuable insights into how common procedures can impact your risk, practical tips for managing anticoagulation and other medications, and key questions to discuss with your healthcare team.

📅 Reserve your spot today at the link in bio!

#stoptheclot #bloodclots #vte #knowyourrisk #bloodclotsurvivor #bloodclotpatient #anticoagulants #peptalk #bloodclotwebinar #bloodclotrisk

Autumn shares how leg pain, initially dismissed as

Autumn shares how leg pain, initially dismissed as a cramp, led to a life-threatening pulmonary embolism. Her journey highlights the dangers of blood clots linked to birth control and immobility, the importance of recognizing symptoms, and the need for quick action.

Read more patient stories at the link in bio.

#stoptheclot #stoptheclotstory #vte #bloodclots #pulmonaryembolism #pe #pesurvivor #dvt #deepveinthrombosis #birthcontrol #bloodclotsurvivor #bloodclotpatient #bloodclotawareness

Attention, NBCA community! Are you (or someone yo

Attention, NBCA community!

Are you (or someone you know) an early-career scientist or clinical researcher passionate about advancing thrombosis research? The 2025 Jennifer Luft Emerging VTE Clinician Research Award is now accepting applications!

This $20,000 award supports individuals dedicated to improving the understanding and treatment of Venous Thromboembolism (VTE).

Applicants may be working in basic, translational, clinical, epidemiologic, bioengineering sciences, or any other field, but must be currently working on or planning a patient-oriented VTE project (e.g., studies of shared decision making, access to care, quality of life, health disparities, etc.).

The award is named in memory of Jennifer Luft, who suffered from pulmonary emboli in 2012 at age 23, resulting in an anoxic brain injury that left her unable to walk or talk. Jennifer’s family lovingly cared for her until her death in 2022. Inspired by her resilience, NBCA established this award in 2023 to honor Jennifer’s legacy.

Apply by Friday, February 28, 2025 at 11 p.m. ET. Head to the link in bio for more information about eligibility and to submit your application.

#stoptheclot #bloodclots #vteresearch #vteclinician #bloodclotresearch #jenniferluft
#pulmonaryembolism #pe #patientorientedresearch #emergingclinicians #emergingvteclinicians

Becoming a parent is life-changing, but for Kyra,

Becoming a parent is life-changing, but for Kyra, it also brought unexpected challenges when severe symptoms after childbirth were dismissed until it was almost too late. Her story sheds light on the risks of blood clots during pregnancy and postpartum, the importance of genetic testing, and the need for greater awareness.

Read more stories at the link in bio.

#stoptheclot #stoptheclotstory #bloodclots #vte #dvst #pregnancy #postpartum #fourthrimester #factorvleiden #FVL #proteinsdeficiency #bloodclotsurvivor #bloodclotawareness

Did you know there is little federal funding for b

Did you know there is little federal funding for blood clot education and awareness efforts in the United States? The National Blood Clot Alliance is on a mission to change that, and we need your help.

We are urging Congress to unlock funding for an expansion of educational and awareness programs to reach more people with life-saving information about blood clots.

It takes a village to raise awareness about this bipartisan issue. Getting involved is easy. Type in your address at the link below to share your story with your local representatives. Let your voice be heard!

👉 Take action at the link in bio (bit.ly/ClotAdvocate2025)

#stoptheclot #bloodclots #advocacy #calltoaction #contactyourreps #bloodclotadvocacy #bloodcloteducation #bloodclotfunding #bloodclotawareness #bloodclotprevention

NBCA Thrombassador program manager, blood clot sur

NBCA Thrombassador program manager, blood clot survivor, and proud U.S. Navy veteran Stephanie Martinez is raising blood clot awareness this weekend at the @CityofJax Veterans' Stand Down Resource Day.

Did you know that military personnel and veterans are at an increased risk for blood clots?

Several factors contribute to this elevated risk, including:

1. Injuries and surgeries: Combat-related injuries, surgeries, and prolonged immobility during recovery can increase clotting risk. These events often result in damage to blood vessels or periods of immobility, both of which are key risk factors.

2. Immobilization and long travel: Veterans often endure long travel times or may experience periods of restricted mobility, which are known to increase the risk of clots.

3. High levels of physical and emotional stress: Stress and conditions like post-traumatic stress disorder (PTSD), which is more common among veterans, can contribute to inflammation, which raises the risk for blood clots.

4. Underlying health conditions: Higher rates of hypertension, diabetes, and other cardiovascular issues in the veteran population can compound clotting risk.

Increased awareness among veterans and their healthcare providers is critical, as early detection and intervention are essential in preventing serious complications from blood clots. Awareness saves lives!

#stoptheclot #bloodclots #vte #veterans #thrombassador #bloodclotawareness #bloodcloteducation
@vanfsg @cityofjax

If you're at risk for blood clots or take anticoag

If you're at risk for blood clots or take anticoagulants, even routine procedures like dental work may require special considerations. Our February PEP Talk is here to help you prepare and stay safe.

Gain insights into how common procedures affect clotting risks, guidance on managing anticoagulation and medications, questions to ask your healthcare team and more.

This session will help you approach medical care with peace of mind.

📅 Secure your spot at the link in bio (https://bit.ly/Feb2025PEPTalk)

#stoptheclot #bloodclots #vte #dentalwork #medicalprocedures #knowyourrisk #bloodclotsurvivor #bloodclotpatient #anticoagulants #peptalk #bloodclotwebinar #bloodclotrisk

🎙️ New Episode Alert! 🎙️ Season 2, Epis

🎙️ New Episode Alert! 🎙️

Season 2, Episode 5 of Taking a Breath: A Stop the Clot podcast is now available on all major podcast platforms.

In this episode, listeners hear from Dave Hall, morning news anchor of Fox 5 Las Vegas. After tearing his Achilles tendon while playing pickleball in 2023, he developed a life-threatening saddle pulmonary embolism. Fortunately, he was treated with mechanical thrombectomy, providing immediate relief.

At his wife’s encouragement, he spoke about his blood clot experience during his newscast. To his surprise, the response he received from viewers was the was more significant than any story he had reported in his 30-plus years in the news business.

Thank you, Dave, for sharing your story and spreading life-saving awareness!

Listen at the link in bio or wherever you get your podcasts.

#stoptheclot #takingabreath #bloodclots #bloodclotpodcast #pe #pulmonaryembolism #bloodclotawareness #bloodclotsurvivor #davehall #mechanicalthrombectomy #thrombectomy

Despite following her medical team's instructions,

Despite following her medical team's instructions, Emily faced an unexpected challenge after hip surgery. Her story is a powerful reminder of why awareness and prompt action are so important.

👉Swipe through to read Emily's full story, and leave a comment if you can relate to this experience.

Read more patient stories at the link in bio.

#stoptheclot #bloodclots #pulmonaryembolism #pe #pesurvivor #hipsurgery #athlete #pulmonaryinfarction #bloodclotsurvivor #bloodclotawareness

The National Blood Clot Alliance proudly announces

The National Blood Clot Alliance proudly announces the launch of its first-ever B.L.A.C.K. Church Bus Tour—Black Lives Advocating for Clot Knowledge.

This groundbreaking initiative will take place during Blood Clot Awareness Month in March 2025, visiting Black churches in six key cities across the Southern United States, home to over 55% of the Black population:

- Atlanta, GA
- Birmingham, AL
- Charlotte, NC
- Houston, TX
- Memphis, TN
- New Orleans, LA

“It is unacceptable that such a preventable condition remains a leading cause of mortality among Black Americans, especially Black mothers,” said NBCA Board Member and blood clot survivor Dr. Kakneka Mason.

The tour aims to address these critical health disparities by partnering with trusted local churches to deliver lifesaving blood clot education and awareness directly to Black communities.

Attendees will gain access to valuable resources, free screenings, expert speakers, and practical tools to protect themselves and their families from blood clots.

👉 Learn more at the link in bio (https://bit.ly/StopTheClotBusTour2025)

#stoptheclot #stoptheclotbustour #bloodclotawareness #bloodclotawarenessmonth #bloodcloteducation #bloodclotsurvivor #bustour #healthequity #blackhealthmatters

Blood Clot Awareness Month (March) is fast approac

Blood Clot Awareness Month (March) is fast approaching, and it’s time to take action! Join us for our 5th Annual 100,000 Reasons Challenge and be part of a movement that honors the 100,000 lives lost to blood clots each year.

By participating in this 31-day virtual challenge during Blood Clot Awareness Month, you’re not just moving your body—you’re raising awareness, supporting critical research, and helping prevent future tragedies. Your participation amplifies the voices of those we’ve lost and shows our collective commitment to honor their memories.

✔️ Choose any activity that promotes movement.

✔️ Set your own activity and fundraising goals.

✔️ Make a meaningful difference for Blood Clot Awareness Month.

Let’s make every step, every pedal, every stroke count. Join the Challenge today and help save lives!

👉 Sign up today at the link in bio (bit.ly/100kReasons2025)

#stoptheclot #BloodClotAwarenessMonth2025 #100KReasonsChallenge #100KReasonsChallenge2025 #MoveToStopTheClot #bloodclotawareness #bloodclotpatient #bloodclotsurvivor

The National Blood Clot Alliance honors the many a

The National Blood Clot Alliance honors the many accomplishments of Dr. Martin Luther King Jr. on this special day.

His words resonate deeply as we strive for a healthier, more just world: "Of all forms of discrimination and inequalities, injustice in health is the most shocking and inhuman."

Let's unite in the fight against health disparities.

#stoptheclot #mlkday

Undergoing medical procedures like LASIK, dental w

Undergoing medical procedures like LASIK, dental work, biopsies, or colonoscopies can be routine, but for individuals at risk of blood clots or on anticoagulation, they may require extra precautions.

Join us for our February PEP Talk on Tuesday, Feb. 11 at 7 p.m. ET to understand how medical interventions can influence clotting risks and learn practical strategies to navigate them safely.

During this PEP Talk, we’ll discuss:

✅How specific procedures may affect blood clot risks.
✅Key questions to ask your healthcare provider before undergoing a procedure.
✅Managing anticoagulation therapy and other medications during pre- and post-procedure periods.
✅Tips for recognizing signs of potential complications.

This session is designed to empower blood clot patients with the knowledge and tools needed to make informed decisions and confidently approach medical care. Don’t miss this chance to ask questions and gain valuable insights from experts in the field.

👉 Register at the link in bio (bit.ly/Feb2025PEPTalk)

#stoptheclot #bloodclots #vte #knowyourrisk #bloodclotsurvivor #bloodclotpatient #anticoagulants #peptalk #bloodclotwebinar #bloodclotrisk

"I am a healthy 23-year-old woman and had never ex

"I am a healthy 23-year-old woman and had never experienced any real health concerns in the past. I walk the same route every morning to work, but on this particular morning, I was out of breath almost instantly.

When I sat at my desk, I was still unable to catch my breath. It felt like the air was really thick, and my lungs were working overtime just to take in enough air.

Two hours later, I drove myself to the emergency department, where they took a blood test and found my D-Dimer level was elevated. After that, I had an ultrasound, a heart echo, and a CT scan, which revealed multiple large blood clots in all lobes of both lungs. I was in complete shock as I never thought anything like this would happen to me.

The doctor determined the cause to be the oral contraceptive pill, that I had been taking since I was 16. I was later diagnosed with factor V Leiden, and after being on blood thinners for six months, I am now off them and doing well.

This experience has given me a new perspective on life. Surviving something so serious made me realize how fragile health can be, even when you feel young and invincible. I’ve learned to prioritize my well-being and not to feel guilty about taking time for self-care.

I am forever grateful that I went to the doctor straight away, even though I was so hesitant at the time. Never let embarrassment stop you from getting help. I almost didn’t go to the hospital because I was worried about it being nothing, but going saved my life. Your health is far more important than worrying about what others might think."

Read more stories at the link in bio.

#stoptheclot #stoptheclotstory #bloodclots #vte #factorvleiden #FVL #birthcontrol #estrogen #knowyourrisk #PE #pulmonaryembolism #bloodclotawareness #bloodclotsurvivor

Thank you to everyone who joined our January PEP T

Thank you to everyone who joined our January PEP Talk on understanding the genetics of blood clots. We invited experts Dr. Jordan Schaefer and Dr. Karl Desch of the University of Michigan to join our discussion.

In this clip, Dr. Desch explains why some people with a genetic blood clotting disorder may develop clots and why others with the same disorder do not.

✅ Watch the full recording as well as our other PEP Talks: https://bit.ly/JanPEP25 (👉 link in bio)

✅ Subscribe to our YouTube channel to receive first access to the latest video content.

✅ Sign up to join us on Tuesday, Feb. 11 at 7 p.m. ET for our next PEP Talk, where we’ll discuss medical procedures and blood clots. Register: https://bit.ly/Feb2025PEPTalk (👉 link in bio)

(PEP Talk should not be considered as medical advice. Please consult directly with your healthcare provider for medical advice.)

#stoptheclot #bloodclots #vte #thrombophilia #peptalk #factorvleiden #patientseducatingpatients #bloodclotwebinar #familyhealthhistory #bloodcloteducation #knowyourrisk #geneticsandbloodclots

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