Home / JUNE PEP TALK: VTE AND HE

JUNE PEP TALK: VTE AND HE

Date: June 11, 2024

Time: 7:00 pm

Did you know that the overall risk of blood clots is slightly higher in men than in women? That risk increases as men age, and certain male cancers — including prostate cancer — leads to a higher incidence of blood clots. Hear from three patients as we unpack the male blood clot experience.

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HAPPENING TONIGHT: Don’t miss our January PEP Ta

HAPPENING TONIGHT: Don’t miss our January PEP Talk happening tonight at 7 p.m. ET! Join us to explore how genetics play a role in blood clot risk and what it means for you and your loved ones.

📅 When: Tuesday, January 14 at 7 p.m. ET.

📍 Where: Online – register now and submit your questions! (bit.ly/Dec2024PEPTalk -- link in bio!)

NBCA will host clinical guests: Dr. Jordan Schaefer and Dr. Karl Desch, both of the University of Michigan Health.

P.S. - If you can’t attend the live event, no worries! Register to be the first to receive access to the recording.

#stoptheclot #bloodclots #vte #thrombophilia #peptalk #factorvleiden #patientseducatingpatients #bloodclotwebinar #familyhealthhistory #bloodcloteducation #knowyourrisk #geneticsandbloodclots

Did you know blood clots can run in families? Unde

Did you know blood clots can run in families? Understanding the genetic factors that increase clotting risks is vital for prevention and awareness.

Join us TOMORROW for our first PEP Talk of 2025:

📅 When: Tuesday, January 14 at 7 p.m. ET.

📍 Where: Online – register now at the link in bio! (bit.ly/Dec2024PEPTalk)

This webinar will explore hereditary clotting conditions, what to know about family history, and how you can take proactive steps to protect your own health, and the health of your loved ones.

👉 Don’t miss this important session! Register to reserve your spot at the link in bio.

#stoptheclot #bloodclots #vte #thrombophilia #peptalk #factorvleiden #patientseducatingpatients #bloodclotwebinar #familyhealthhistory #bloodcloteducation #knowyourrisk #geneticsandbloodclots

"I had my first DVT and PE almost five years ago a

"I had my first DVT and PE almost five years ago at 21 years old. My leg was hurting, but I kept ignoring it. When my dog Kiko started sniffing my leg and whining, I felt that something was wrong because that was unusual behavior for him.

I went to urgent care, and they sent me to the ER. I had a massive clot in my entire leg and a PE. The doctor said I made it just in time.

Two weeks after having the clot cleared, I went for a follow-up and had already formed another massive clot. I had to get a stent put in my iliac vein due to May-Thurner syndrome, and I have to be on blood thinners for life because I also have factor V Leiden (heterozygous).

Since then, I have been treated for other venous diseases, including arteriovenous malformation (when blood vessels are abnormally tangled and form direct connections between arteries and veins, bypassing capillaries), nutcracker syndrome (when the left renal vein is compressed between the aorta and superior mesenteric artery) and congested pelvic syndrome (a chronic condition that causes pelvic pain, thought to be caused by enlarged veins in the lower abdomen) and wonder if they are all related.

I have pain in my legs still and have venous insufficiency, and I am trying to get better every day. I am grateful to my team of doctors and my doggy Kiko for saving my life!

I want to spread awareness that anyone can get a clot! Never give up and always keep fighting!"

Read more stories at the link in bio.

#stoptheclot #bloodclots #vte #pe #dvt #venousinsufficiency #FVL #factorvleiden #mts #maythurnersyndrome #bloodclotsurvivor #bloodclotpatient #bloodthinners #bloodclotawareness

Our next PEP Talk on the genetics of blood clots i

Our next PEP Talk on the genetics of blood clots is fast approaching! We hope to see you TOMORROW, Tuesday, Jan. 14 at 7 p.m. ET.

Thank you to everyone who has registered and sent their questions on this topic. Our experts, Dr. Jordan Schaefer and Dr. Karl Desch, both of the University of Michigan Health, will answer questions like these, which were submitted from our community.

There is still time to sign up and send in any questions you have! Register at the link in bio.

If you’ve already registered and would like to submit a question, please email info@stoptheclot.org.

#stoptheclot #bloodclots #vte #thrombophilia #peptalk #patientseducatingpatients #bloodclotwebinar #familyhealthhistory #bloodcloteducation #knowyourrisk #geneticsandbloodclots #bloodclotsurvivor

Staying active is essential for your health, but a

Staying active is essential for your health, but as a blood clot survivor, exercising in frigid weather requires extra care. As much of the US is experiencing a cold snap, we have some tips to keep you moving safely:

- Warm up indoors: Start with light stretches or activities indoors to get your blood flowing before heading outside.

- Dress for the weather: Layer up with breathable, moisture-wicking clothing to stay warm and maintain circulation.

- Ease into it: Avoid sudden, intense activity, which can stress your body. Choose moderate exercises like walking or gentle jogging.

- Stay hydrated: Cold air can be dehydrating—drink water before, during, and after your workout.

- Take breaks: Listen to your body. If you feel discomfort, especially in your legs or chest, stop and rest.

- Know the signs: Stay alert for symptoms of blood clots, such as swelling, pain, or redness in your legs, or sudden shortness of breath. Seek medical attention immediately if needed.

Winter workouts can be invigorating and safe with the right precautions. Let’s keep moving!

#stoptheclot #bloodclots #vte #exercise #bloodclotsurvivor #bloodclotawareness #coldweatherexercise #exercisesafety

Did you know? If a parent or close family member h

Did you know? If a parent or close family member has experienced blood clots, your risk could be higher, too.

This reality hits close to home for so many, like Todd, who lost his mother to a pulmonary embolism before genetic risk factors like factor V Leiden were even discovered. It wasn’t until he suffered multiple blood clots himself that the pieces started to come together—this was in his family all along.

Blood clots can run in families due to inherited conditions like factor V Leiden, which may increase your chances of developing a clot. Knowing your family history is a powerful tool—it helps you take proactive steps to protect your health.

Join us as we dive deeper into this important topic during our next PEP Talk on Tuesday, Jan. 14, at 7 p.m. ET. Sign up and submit your questions at the link in bio.

#stoptheclot #bloodclots #vte #thrombophilia #peptalk #factorvleiden #patientseducatingpatients #bloodclotwebinar #familyhealthhistory #bloodcloteducation #knowyourrisk #geneticsandbloodclots

Blood clot survivors: Set your sights on an unforg

Blood clot survivors: Set your sights on an unforgettable goal for 2025!

If you love bike riding, the TD Five Boro Bike Tour on Sunday, May 4, 2025, is the perfect event to add to your calendar. Imagine cycling through all five boroughs of New York City on car-free streets, soaking in iconic views and vibrant energy — an experience like no other.

Whether you're a seasoned cyclist or just a casual rider, this is a great opportunity to set a goal, train, and look forward to a day of adventure. Plus, you’ll be riding for a cause, supporting NBCA’s mission to raise awareness and save lives from blood clots.

Now’s the time to secure your spot. Applications are open! Learn more and apply at the link in bio.

@BikeNewYork #stoptheclot #teamstoptheclot #TDFiveBoroBikeTour #BikeNewYork #nyccycling #bicycling
#bloodclotawareness #bloodclotprevention #charityride #bloodclotsurvivor #bloodclotpatient

"My story is about my daughter Amara. She was a vi

"My story is about my daughter Amara. She was a vibrant, free-spirited 14-year-old artist full of aspirations. Her life was tragically cut short on January 9, 2020 by a pulmonary embolism (PE) just three weeks after she was prescribed birth control pills to control her acne.

When Amara was prescribed birth control, I asked her pediatrician about the risks of blood clots. I don’t know why, I just have always heard it can cause them.

The doctor laughed, made a light hearted joke and said, 'Yeah, if you’re over 35 or a smoker. Mara, you don’t smoke do you? Nah? I think we’re good here, Mom.'

After waiting for what felt like an eternity, her autopsy results came back six months later to reveal that her death was caused by a combination of taking birth control and having an underlying blood clotting disorder known as factor V Leiden (heterozygous).

Unaware of Mara’s genetic predisposition, we had no reason to suspect a life-threatening risk would occur from taking the birth control pill.

I was tested for factor V Leiden and so was my other daughter. We are both negative.

Amara’s untimely death was a profound loss, not only for our family but to everyone who knew her. A loss like this highlights what in my opinion is a significant gap in our healthcare system: there is an absence of mandatory screening for genetic clotting disorders before prescribing medications known to increase clotting risks. This gap left Amara vulnerable and continues to leave many others susceptible to preventable tragedies.

I strongly believe that mandatory blood clotting disorder screenings should be implemented, especially before prescribing medications with known clotting risks to minors and adolescents. By raising awareness and pushing for proactive testing, we can work to bring change and prevent other families from experiencing the same heartache and loss!"

Read more stories at the link in bio.

#stoptheclot #bloodclots #vte #pe #pulmonaryembolism #birthcontrol #estrogen #bloodclotfatality #fatalpe #bloodclotawareness

Multiple wildfires are currently raging across the

Multiple wildfires are currently raging across the Los Angeles area, significantly impacting air quality.

Blood clot patients are not necessarily at increased risk unless they have underlying chronic lung or heart conditions, according to Dr. Nancy Amoroso, a pulmonologist and member of NBCA’s Medical and Scientific Advisory Board.

If you live in the impacted area, follow these tips:

- Monitor the air quality index for your local area.
- During times of poor air quality, stay indoors and keep your windows and doors closed.
- Consider using an air purifier or air filter to improve indoor air quality.
- When using HVAC systems or window AC units, make sure they are set to recirculate air.
- When outside, consider wearing an N95 respirator mask.
- Seek medical attention if you develop new or worsening respiratory or cardiac symptoms.

#stoptheclot #bloodclots #wildfires wildfiresafety #airquality #losangeleswildfires #eatonfire #palisadesfire #climatechange #bloodclotpatient #bloodclotsurvivor

"In the summer of 2012, I was training hard: runni

"In the summer of 2012, I was training hard: running, lifting weights, and eating clean. My goal was to be in my best shape for my best friend's bachelor party in Las Vegas on Labor Day Weekend.

My wife and I also took a trip to Europe. Naturally, I was sore and tired.

In early August, I was at my mom's doctor's appointment with her. While waiting in the lobby, I had a sudden pain in my chest and couldn't breathe. The nurses connected me to an EKG machine to make sure I was not having a heart attack. All was good. They said it was likely bad cramps from my morning back workout.

About a week later, my calf felt like a machete was cutting through it. I was told it was probably a torn calf muscle. So the next morning I went to the ER to get it checked out and sure enough, it was a DVT and PE.

Doctors were shocked that a healthy, active 33-year-old could have this.

Even after I got out of the hospital, doctors didn't know what to do. I was on Coumadin for a year.

Then in December of 2014, coming home on a bus from Key West, I noticed similar pain. For two years, I had been reading the NBCA's website and learning as much as I could. I immediately knew what it was and went to the hospital where they found another clot in my leg.

I also tested positive for HLA-B27 protein on my white blood cells. HLA-B27 is not directly associated with an increased risk of blood clots, but it is linked with an increased susceptibility to certain autoimmune diseases, which can increase the risk for clots.

The NBCA has been a helpful not just in my own recovery but has also armed me with the knowledge to save a few other colleagues of mine.

This experience has taught me that blood clot survivors can do anything, and that we are all a team. Anyone whose life has been affected by clots can relate with each other."

👉 Read more stories at the link in bio.

#stoptheclot #bloodclots #vte #dvt #pe #pulmonaryembolism #deepveinthrombosis #travel #chronicdehydration #bloodclotsurvivor #bloodclotawareness #athlete #stoptheclotstory

"On January 19, 2024, I received a call from my 13

"On January 19, 2024, I received a call from my 13-year-old son, Christian. He was struggling to breathe. He’d been unwell for weeks, starting with an unknown virus that had progressed to pneumonia. Just the day before, he was diagnosed and treated in an ER.

We took him back, assuming his breathing issues were a pneumonia complication. At the ER, they began treating him for pneumonia again, but Christian complained of sharp pain near his right ribs.

This was odd, as his pneumonia was in his left lung. I mentioned our family’s history of blood clots, but the doctor dismissed it, explaining that blood clots are rare in children.

He was about to discharge us when a sense of dread crept over me. Christian’s pain persisted, and I pressed the doctor again. He offered a D-dimer test to rule out clots, though he assured us it was unlikely.

When the test came back elevated, the doctor ordered a CT scan. The CT scan confirmed it— a pulmonary embolism that had broken off and pieces reached his right lung’s capillaries.

The doctor was shocked and apologized, recognizing how serious it could have been if left unchecked. Christian was terrified, especially since his grandmother passed from a pulmonary embolism 10 years prior.

He spent a week in the hospital, part of it in ICU. While hospitalized, he experienced rapid heart rate and high blood pressure and had to relearn to walk and rebuild his lung strength.

Genetic tests revealed he has factor V Leiden and two copies of the factor II prothrombin gene mutation. They also found a clot in his upper thigh, which we believe led to the PE. Disturbingly, he had no symptoms in his leg.

I got the New Patient Guide from NBCA and it was beneficial for him to read about what he is dealing with. The explanations are much more informative that what the hospital tells you. He also felt encouraged reading the personal stories that have been shared by athletes.

Christian’s recovery has been miraculous. His lungs have healed, his heart sustained minimal damage, and he’s back to his active life. Awareness is everything."

Read more stories at the link in bio.

Blood clot survivors can achieve incredible things

Blood clot survivors can achieve incredible things! 🏈💪 A huge congratulations to Trey Smith, Kansas City Chiefs offensive lineman and blood clot survivor, for being selected to participate in the 2025 NFL Pro Bowl Games starting next month! 🎉

After suffering a life-threatening pulmonary embolism during his sophomore year at the University of Tennessee, Trey thought his football dreams were over. But with resilience, determination, and the right care, his story was far from over—it was just beginning.

Today, Trey not only dominates on the field but also inspires countless others facing similar challenges.

Learn more about Trey’s recovery journey—including an exclusive interview with fellow blood clot survivor and Olympic medalist swimmer Katie Hoff: https://www.stoptheclot.org/news/treysmith/ (link in bio)

#stoptheclot #bloodclots #treysmith #kansascitychiefs #superbowl #probowlgames #nfl #probowl #nflprobowlgames #pesurvivor #pulmonaryembolism #bloodclotsurvivor @trey_smith @chiefs @kthoff7 @nfl

"I was diagnosed with my clot in February 2022 aft

"I was diagnosed with my clot in February 2022 after a period of immobility recovering from a torn hamstring. I was unaware of any underlying health conditions, and the blood clot was seemingly out of nowhere.

The medical professionals where I was living at the time placed me on blood thinners and left me to it, causing me to experience worsening pain and swelling, which was constantly ignored. My GP told me I was too young to be in such pain and accused me of drug seeking.

My leg was over triple the size of my other one, leaving me barely functional. I suffered like this for almost a year without intervention.

I moved with my family at the end of 2022. Rather than have my medical records transferred, I went to a new GP from scratch and got second opinions on everything. Through that, I got diagnoses of factor 2 prothrombin gene mutation (heterozygous), antiphospholipid syndrome, and post-thrombotic syndrome.

However, by the time of these referrals, the damage had already been done. I had permanent weakness in my leg, constant chronic pain radiating down my leg and left me stuck using a four-wheeled walker with a seat to assist me.

In addition to my injury and these diagnoses, my other risk factors included being overweight and taking estrogen-based birth control.

Due to this experience, I was unable to work and unable to walk without aids, causing me to suffer both physically and mentally. I have only just begun to attempt to recover my mental health.

My advice to others is to never give up, even if you’re at your lowest, and you probably will reach that point. But there is always a silver lining somewhere in the future, you just have to hold on to find it."

Read more stories at the link in bio.

#stoptheclot #dvt #vte #deepveinthrombosis #bloodclots #aps #antiphospholipidsyndrome #factorII #factor2 #prothrombingenemutation #pts #prothrombingenemutation #bloodclotsurvivor #bloodclotawareness

Blood clots can have a genetic component, meaning

Blood clots can have a genetic component, meaning certain inherited conditions or traits may increase a person's risk of developing clots.

Having a family member who experienced blood clots, particularly at a young age or with no known risk factors, could signal a genetic predisposition.

Knowing about your family health history allows individuals to take preventive steps, such as modifying risk factors, seeking medical advice, or considering genetic testing.

Learn more about this at our January PEP Talk on Tuesday, Jan. 14 at 7 p.m. ET. Register at the link in bio.

#stoptheclot #bloodclots #vte #thrombophilia #peptalk #patientseducatingpatients #bloodclotwebinar #familyhealthhistory #bloodcloteducation #knowyourrisk #geneticsandbloodclots

NBCA is grateful to Wonder Woman actress Gal Gadot

NBCA is grateful to Wonder Woman actress Gal Gadot for courageously sharing her experience after suffering a blood clot in her brain, also known as cerebral venous sinus thrombosis (CVST), during her pregnancy in February 2024.

“In February, during my eighth month of pregnancy, I was diagnosed with a massive blood clot in my brain,” she wrote in an Instagram caption along with a photo of her and her infant in the hospital. “For weeks, I had endured excruciating headaches that confined me to bed, until I finally underwent an MRI that revealed the terrifying truth.”

Now “fully healed and filled with gratitude,” Gadot urged everyone to listen to their bodies, saying, “being attuned to your body can be lifesaving.”

She also wanted to raise awareness about the risk of developing blood clots during pregnancy.

“While rare, it’s a possibility, and knowing it exists is the first step to addressing it,” she wrote, adding, “If even one person feels compelled to take action for their health because of this story, it will have been worth sharing.”

Learn about the risks women face during pregnancy at the link in bio.

#stoptheclot #bloodclots #vte #cvst #knowyourrisk #pregnancy #bloodclotsurvivor #wonderwoman #bloodclotawareness #galgadot @gal_gadot

"I am a healthy 44-year-old mom, wife, and profess

"I am a healthy 44-year-old mom, wife, and professional who has never had any health issues. But 2024 was an extremely busy year, and I was having a lot of stress and anxiety.

In October, I started experiencing some minor pain in my shoulder. Within a few days, the pain had moved into my side and stomach. The pain became very intense to the point I was having trouble breathing.

I went to the ER, where the doctor suspected I could have blood clots. I had an ultrasound, X-rays, and a CT scan that showed I had multiple clots in my right lung. One of the clots was larger than the others close to my diaphragm.

The ER doctor suspected the clots were caused by my birth control pill. I have been on this pill since I was 18 years old. Immediately, I was put on blood thinners and could no longer take an estrogen-based birth control.

I am so thankful I did experience pain because I knew something was wrong. I am extremely thankful I caught them in time. It is so important to listen to your body, and if something doesn’t feel right, please get it checked out."

Read more stories at the link in bio.

#stoptheclot #bloodclots #vte #birthcontrol #pulmonaryembolism #pe #pesurvivor #bloodclotsurvivor #bloodclotawareness

🚨 Last Chance to Make Your Impact! 🚨 The cl

🚨 Last Chance to Make Your Impact! 🚨

The clock is ticking ⏰—today is the final day to make a TRIPLE IMPACT donation to the National Blood Clot Alliance.

Your gift will be matched 2:1, tripling your power to:
- Raise awareness about life-threatening blood clots.
- Provide vital resources to patients and families.
- Advocate for early diagnosis and prevention.

Don’t miss this opportunity to save lives and make a difference. Every dollar counts!

🌟 Give now before the clock strikes midnight: bit.ly/GiveBack2024 (link in bio)

#stoptheclot #bloodclotawareness #yearenddonation #giveback #newyears2025 #bloodclots

✨ Ring in the New Year with a Life-Saving Messag

✨ Ring in the New Year with a Life-Saving Message! ✨

As an estimated one million people gather in Times Square to welcome 2025, the National Blood Clot Alliance is lighting up the iconic I Love NY screen with a powerful public service announcement, reminding everyone to prioritize their health.

Join us in celebrating this milestone and our shared mission to save lives by spreading awareness about blood clots. If you’re in Times Square, snap a photo or video of our PSA and tag @stoptheclot—we’d love to see your view!

This New Year’s Eve, make a resolution that matters: support blood clot education and prevention. And here’s an amazing opportunity—your gift will have TRIPLE the impact thanks to an anonymous donor matching all gifts (up to $30,000) until the clock strikes midnight tonight!

🎆 Together, we can make 2025 brighter, healthier, and full of hope. Don’t miss this chance to maximize your impact. Visit https://bit.ly/GiveBack2024 to make your gift today! (Link in bio)

#TimesSquare #NewYearsEve #BloodClotAwareness #StopTheClot #BloodClots #ILoveNY #IHeartNY #NewYorkCity #AwarenessSavesLives #BloodClotSurvivor

@kthoff7 @tatyanamcfaddenusa @heddybanjo @everythingpodcastsstudios

Do you want to maximize the impact of your year-en

Do you want to maximize the impact of your year-end donation to NBCA?

Many employers sponsor matching gift programs and will match any charitable contributions made by their employees.

Find out if your gift is eligible for matching by clicking the link below and typing your employer’s name in the search field. Many employers will match donations that were made up to one year ago!

Check your eligibility for matching gifts at the link in bio.

#stoptheclot #bloodclots #vte #yearenddonations #employermatch #charitablegiving #bloodclotawareness #bloodcloteducation

"A week before everything took a drastic turn, I h

"A week before everything took a drastic turn, I had fallen and broken my foot. I was placed in a boot and told to rest.

A few days later, I noticed the back of my knee hurting. Not just a regular ache, but one that felt like a cramp and the pain meds didn’t touch it. I passed it off as pain from my boot so I massaged the area and went to bed.

I woke up the next day and I couldn’t get a full breath. Before I could realize what happened, I woke up in the floor. I was gray colored, covered in sweat and confused.

I tried to make it to the doorway to ask for help before I passed out again. A cycle of waking up and passing out would happen a couple more times. I remember coming to and begging not to let me die. I couldn’t breathe.

An ambulance was called. Scans and tests were done, then I was life flighted to another hospital where I received immediate treatment and spent a week in the ICU.

After two years on warfarin, I’m healthy and on aspirin as of now. The anxiety I have after my clot remains every day. I was only 25 years old and told another minute of waiting could have killed me.

This experience has taught me not to take life for granted. I took control of my health and lost 114 pounds. I always keep an eye on my body and educate others on signs and symptoms of blood clots."

Read more patient stories at the link in bio.

#stoptheclot #bloodclots #vte #birthcontrol #brokenfoot #pulmonaryembolism #pe #pesurvivor #bloodclotsurvivor #bloodclotawareness

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